
Everywhere in nature we are taught the lessons of patience and waiting. We want things a long time before we get them, and the fact that we want them a long time makes them all the more precious when they come. ~Joseph F. Smith
I love this quote that Sarah has at the top of her blog. How true this rings right now. We want nothing more than to snap our fingers and have her well again. We are learning a whole different lesson in patience. Yes, we are so grateful for the progress Sarah has made....SO grateful. We just wish she was out of the discomfort she is in....both physical and emotional. We want her home so she can hold her baby, cuddle up with Roxy, and be with Jimi...to be able to sleep in her own bed and let her be in control. I know it is so hard for her to not be able to move like she would like, to talk, to drink. She is so thirsty, but she can't drink because it would end up in her lungs and the last thing her sick lungs need is more fluid in them. I can only imagine not having a drink for 10 days and how much you would just want something to drink..food you can do without, but thirst is something you can't deny. When I was saying goodbye to her tonight I told her she had better get some good sleep or Santa wouldn't come. She got her clipboard and wrote "water from Santa?". Oh Sarah. We love that your sense of humor is back in full force.
The roller coaster continues. Yesterday was such a good day. Today wasn't a bad day..but it wasn't fabulous either. Sarah was really tired this morning. She didn't sleep well last night. Everything was about the same. She was down to a PEEP of 6 and about 70% oxygen...the FiO2 has fluctuated here and there. Labs looked good. Her chest x-ray wasn't improved and there was still a lot of fluid on her lungs. Dr. Lotten wanted to get a CT to see get a better view. Sar got up with PT. She was awesome and did everything she was asked. She sat up in bed for awhile. She was pretty exhausted after PT and with not sleeping well last night. She got some fentanyl and then rested up for her roadtrip to CT.
Jimi went with her down to CT. The results came back and were not good. Today's CT wasn't worse than the one she had last week, but it really wasn't very much improved. There was still a lot of fluid collections. Her lungs are still very, very sick. She will probably need to be on the vent longer than we had hoped. It's discouraging and I know it is even more discouraging for Sarah.
They also did a bronchoscopy tonight by her instensivist, Felix. He said there wasn't as much mucous, as there was swelling. He sent a sample for culture down to the lab. If something comes back bacterial, they will be able to start the right antibiotics that will kill that bug. So again...her lungs are very inflamed and will need longer to heal. The doctors have told us this is the case for H1 patients. The virus hits their lungs and literally explodes into every area, affecting every lobe. Then when the acute phase is over, the recovery can be very slow as the lungs repair themselves from all the damage the virus caused. Again...a lesson in patience.
The plan for tonight is to put her back on assist control on the vent to let her get some rest. They have increased her PEEP to 10 to help give her more support as well. I also talked to her nurse and we developed a sign to let him know if she needed pain meds. If anyone visits and she gives the thumbs down sign, it means "I would love some fentanyl pretty please." We hope that she has a good, restful night. Her body needs it so much.
Sarah loves Christmas Eve. In the Wadman family, we get a bunch of finger foods and play games, watch a movie, and hang out. It is always so much fun. Tonight, we had Cafe Rio in the cafeteria. As we were sitting there, a family came up and gave us each an orange. The children were dressed up as angels, shepherds, wise men, there was Joseph, and Mary was holding her doll. They explained that their daughter was involved in a car accident 10 years ago and was ejected. They were told she would not make it....but she did. She walked out of the hospital 2 months later. They spent a Christmas there at the hospital. Since then, every Christmas Eve, they perform the nativity and hand out oranges to the other visitors in the cafeteria. I had to look away and hold back the tears. How amazing...how wonderful of them to spread Christmas cheer to complete strangers.
There are angels all around us. When I walked into the ICU tonight, I stopped and talked to a nurse that had Sarah last Wednesday and Thursday. As I was talking to Riki, she told me she was so happy that Sarah was doing so much better. She was really worried about her when she came in. The next day after she was done working, she went to the temple and put Sarah's name on the prayer roll. And...I started to cry. How amazing...how wonderful for her to do that for a patient.
After we had our Christmas Eve dinner, we all hung out just down the hall from the ICU in one of the clinic waiting areas. We would take turns going in to see Sar. The babies were happy being held, Spencer was running down that super long hallway or coloring, and the guys were throwing the football around. It felt good to be there close to Sarah. Ruth, Skyler, and Bennett showed up with gifts for Sarah and Jimi. How amazing and wonderful for their great friendship and for spending part of their Christmas Eve at the hospital with Sarah and Jimi.
I have been a nurse for 10 years and the lessons I have learned in the past 10 days are something I will never forget. To be on the flip side---the patient side is something very humbling. I learned some of these lessons back in August when my baby was in the NICU for 5 days. It was hard and I worried, but I never felt fear as I have since Sarah has been hospitalized. I have learned how much families put all their trust in the doctors, nurses, and therapists caring for their loved one. I have said so many prayers for those that are caring for my sister...that they will be competent, caring, and focused on her care. I have become even more thankful for modern medicine...for ventilators, for IV pumps, for IV catheters, for foley catheters, for medicine, for labs work, for CT's, for X-rays...basically for everything I have taken for granted because it seems so day to day for me. My eyes have been opened to what I never really could understand before. I am thankful too for those working at the hospital on holidays. Being there tonight, I was grateful for the cafeteria workers, housekeepers, respiratory therapists, nurses, doctors...everyone. Spencer ran up to a housekeeper and asked if she "would help his auntie". The housekeeper was so kind and wished us a Merry Christmas. I will never complain about working a holiday again.
This may not be the Christmas we had ever thought of having, but it will definitely be one that we will remember the love poured out by all our family, friends, and strangers. My Christmas wish has come true...Sarah is healing. Merry Christmas.